Stuff today was mixed. He feels good, then bad, then better, then bad again, then tired. Wish it was more clear cut, but at least that’s better than consistently bad. There was a bit more of a break between how often he’s using his IV pain meds today (it’s still frequent, but not every 2 hours on the nose now). And we’re back to waiting and seeing.
Kirstin
Cystic Fibrosis Sucks 