ERCP was done today. I have mixed feelings about the results. Basically it seems like we are stuck between a rock and a hard place. Things looked much better than last week: no stones, sludge, or puss. That’s good, but at the same time, we’re not sure why Joey’s pain has increased so much again.
In addition to being absolutely exhausted, he has been more confused and generally slower lately. This is part of the progression of his liver failure. Today was a particularly brutal day; he was extremely confused after his ERCP (essentially, he was hallucinating, forgetting he had lines in and almost ripping them out of his body as a result, was shaking badly and was unsteady on his feet). His respirations when he was asleep were also extremely low, so they had to give him a drug to block the receptors in his brain that the painkillers attach to. This means that his breathing increased, but so did his pain. He was a touch surprised to wake up to see me and 3 nurses hovering over his bed. What can I say? The J-man has a way of getting attention from the ladies!
He seems to be doing much better now; sleeping and breathing better. Don’t know what (if anything) can/will be done about his pain and increasing liver symptoms. Come on transplant!
Have you signed your donor card yet? www.transplant.bc.ca
FYI: I’m sleeping at the hospital tonight as per his request. Not the most flattering invitation in the world, but an invitation nonetheless. (He told me that he didn’t know why, but he wanted me to stay. I was assured that it has nothing to do with my charm or rugged good looks. Self-esteem is at a new low).