Joey’s 2012 Pub Night: PR Chapter

My friends and family are awesome. Have I mentioned this lately?

Let me count a few of the ways.

Last night, we had Joey’s first Powell River Pub Quiz night at Ang and Drew’s. Never mind that the majority of the group attended one that was organized for the food bank on boxing day, or that I am fairly consistently drilling people about CF related causes and organ donation awareness, and that this has been going on for years. People still came. People still care. Not just about me and Joey, but about making things better for other people with CF. That warms my heart in a way that I can’t explain. I feel very, very lucky to have such supportive people in my life. Or maybe they just came for the kick ass trophy:

The “Not Sure of Muches” were very humble in their victory, which was solidified after a nail biting tie breaker. The proceeds that were raised are being donated to the Vancouver CF clinic to help purchase another “kitchen cart” so that people with cepacia can make better use of the facilities while they are in the clink. (Cepacia is a bug that doesn’t affect healthy people, but if you have CF and catch it, it’s bad news. People with cepacia are not allowed in the CF resource room to prevent infection in other CF patients, but can send in friends or relatives to retrieve stuff for them, if they are lucky enough to have them around when they need stuff. The kitchen carts mean that people with cepacia are basically going to eat better/at all when they are in hospital since they will have items like a mini fridge, toaster, etc handy in their rooms. If you are interested in helping purchase the kitchen cart, donations can be made to the St.Paul’s Hospital Foundation Adult CF Clinic Patient Enhancement & Equipment Fund. In the memo write: CF clinic fund #01866164, kitchen cart. That’s a eyeful). In case you need a reminder of why this is important, allow me to refresh your memory.

Would you like to eat this?

Or this?

Or this?

Didn’t think so. Joey didn’t either. I believe that one of the young folks from Mountain Park Middle school in Calgary said it best when he sent Joey a card that said: “I hope you get better food soon. Dear staff: get better food”. A man after my own heart.

So our friends helped to get a start on purchasing another kitchen cart. I also get random emails and texts offering emotional support. Sometimes I get TV show recommendations because people know that I’m at a loss of where to start and that Joey would always find me the funny shows, or the trashy shows, or the movies I would like to distract me and cheer me up.

Sometimes they send me funny pictures of their kids enjoying raspberries:

Or sit around and drink coffee and let me mope when I need to. Or help me move in and assemble couches. Or do basic things like grocery shopping because they know that sometimes I just can’t get it together to be okay out in public.

I have the best friends and family in the world. I am very, very lucky.